Dear PARE Community,
Spring always brings a sense of renewed energy – and for me, it’s also the excitement of looking ahead to the EULAR Congress. It’s such an important moment in our calendar, where the whole rheumatology community comes together, including our vibrant EULAR PARE network, with a full and enriching programme that ensures lived experience is embedded and visible throughout the entire Congress. In this edition, you'll find a call for new volunteers – I warmly encourage you to get involved. We were proud to take part in this year's WORD Day webinar, and don't miss our inspiring Stene Prize winner and a great example from the Engagement Programme.
Before you dive in, we’d love your input – take 5 minutes to complete our quick newsletter survey. Enjoy the read, and I hope to see many of you in London this June! ~ By Simon Stones, EULAR PARE Committee Chair. |
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| | London Awaits: Discover the PARE Programme at the EULAR 2026 Congress
It is all happening in London this year, the rheumatology community comes together to share knowledge, spark ideas and strengthen collaboration. The PARE Programme features 11 exciting and innovative sessions designed especially for patient advocates — offering fresh insights, shared experiences and meaningful dialogue. London awaits — don’t miss it!
~ By Jeanette Andersen, EULAR PARE Editorial Board Member.
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| | We Are Looking for You
The EULAR PARE Committee is delighted to launch the annual call for applications for the 2026 EULAR PARE Working Groups. Help shape meaningful projects and activities that support and strengthen the EULAR PARE community.
Interested in contributing your skills and experience? Learn more and apply here by 15 May 2026.
~ By Tanita-Christina Wilhelmer, EULAR PARE Editorial Board Member.
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Children Deserve Better Care — Watch Our WORD Day Webinar
This year’s WORD Day, held on 18 March 2026, was marked by EULAR PARE and EULAR PAED through a jointly organised webinar to explore why children and young people need dedicated paediatric rheumatology care. Hear clinical and family perspectives — and a powerful young voice from Caroline Kirsten (EULAR Young PARE).
~ By Anna Fryxelius, EULAR PARE Editorial Board Member. | | |
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| | Meet Our Edgar Stene Prize Winner at the EULAR 2026 Congress in London
We are delighted to announce our winner, Yusra Momade from Portugal, for her essay “Is it all in genes, or not? How rheumatic and musculoskeletal diseases (RMDs) shape and reshape family connections”. EULAR PARE received 16 inspiring essays this year. Yusra beautifully illustrated and thoughtfully shared her experience of living with scleroderma, showing how illness can transform — and even strengthen — the bonds within her family.
Don't miss Yusra's moving essay here, or listen to her presentation during the PARE Abstract Session: Evidence meets Experience in London.
~ By Corinna Elling-Audersch, EULAR PARE Editorial Board Leader. | | |
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Have You Heard About the EULAR PARE Engagement Programme?
Andri Phoka, President of the Cyprus League of People with Rheumatism (CYLPER), is excited to explain how your organisation can benefit from having a EULAR representative or speaker participate in your national event. “The two engagement visits gave a valuable esteem to our organisation”, says Andri.
~ By Nele Caeyers, EULAR PARE Communications Sub-Committee Chair. | | |
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| | EULAR Office
Seestrasse 240
8802 Kilchberg
Switzerland EULAR PARE
pare@eular.org | | |
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