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Building Your Care Team
Sickle cell disease (SCD) requires lifelong treatment, and patients benefit from the care of a multidisciplinary team of healthcare providers. You, the patient with SCD, and your primary caregiver are the most important members of the team. This email will introduce you to different specialists you may need on your care team, inform you about complications to look out for and alert your doctors to, and guide you toward getting the best care possible for you throughout your life with SCD.
12 Specialists That Patients With SCD May Need on Their Care Team
Managing your SCD requires support. It is important to remember you are not alone—friends, family, and healthcare providers are available to help. Building a strong relationship with your healthcare providers may help you get the care you need and deserve.
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Finding the Right SCD Care Team
Chandra Wallace does not remember a time when she was not “sick.” Her childhood was burdened with repeated hospital visits while feeling cold, tired, and in pain. At age 10, she had her gallbladder removed because of gallstones. When Wallace was age 16, she developed painful ulcers on her leg. She got COVID twice in 2021 and was hospitalized for weeks.
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Four Solutions for SCD Support
When Precious Lee was 1 year old, she began to experience severe pain in one of her arms. Her mother, Tammy, knew something was wrong—Precious had stopped eating and was not moving her arm at all—but the doctors at their local hospital did not share her concern. 
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Spark Good Care Guide
Whether you already have a treatment plan in place or you are just beginning to put one together, you have likely asked the question: How do I get the best care possible for myself or my loved one?
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Managing SCD as an Adult
People with SCD are now living longer than they did in previous decades. Doctors have a better understanding of the disease, are able to diagnose it earlier, and can more readily treat and prevent the infections it can cause. And thanks to new ways to treat and manage SCD, patients are now more aware of what they can do to live healthier, for longer.
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Steps to Better Health for People With SCD Toolkit
In partnership with the American Society of Hematology (ASH), the Centers for Disease Control and Prevention (CDC) has created health guidance materials for people with SCD based on the ASH Clinical Practice Guidelines on Sickle Cell Disease. 
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